Recommended Products

We strive to continue to build relationships with vendors that offer products that can support those living with XP. If you require assistance with connecting with these vendors, please reach out using the Contact Form.

To order, please call toll-free: (888) 322-4450

By mail, phone, fax or e-mail: FOXGLOVES, INC. 1250 North Avenue Beacon, NY 12508 tel: (845) 831-7300 fax: (845) 831-7301 e-mail: info@foxglovesinc.com

Medic Alert Foundation Phone 24hrs/day – 7 days/week 888-633-4298 from outside the us FAX 209-669-2450

Suppliers of clothing for adults and children 3 Chadacre Road Stoneleigh Epsom Surrey KY17 2HD Tel: 208-224-0834 E-mail : sunsibility@hotmail.com Contact: Angeli Khatri

With Rit® Sun Guard (TM) Laundry Treatment, you can put an invisible shield into clothing that helps block more than 96% of the sun’s harmful rays from passing through your clothing!

The The SolarMeter Model 5.7 is 100 times more sensitive than their Model 5.0 and is available directly from Solar Meter. This UVA+B meter measures from 1 to 1,999 microwatts per square centimeter.

UV Safe Plastic: Cost per 2 Sheets – $30

Due to limited supply we are only able to provide 4 sheets of plastic per year per patient.  Please call the office if you have extenuating circumstances. The plastic is provided free of charge however we must charge shipping and handling. Contact us to purchase.

Technical Service Ventilated Anti-UV Mask

To order the vented hood or if you have any questions please reach out to: masque@enfantsdelalune.org