Family and Patient Brochure
Below is our Patient and Family Brochure, which highlights the education, resources, services, and support the XP Family Support Group (XPFSG) provides to individuals and families affected by Xeroderma Pigmentosum (XP).
Our goal is to help patients and families feel informed, supported, and connected to a community that understands the unique challenges of living with XP.
If you would like a hard copy of the brochure, please contact us at
We encourage physicians and healthcare providers to keep copies of this brochure in their offices and share them with newly diagnosed patients and their families. By connecting families with XPFSG early in their journey, we can help ensure they have access to valuable resources, UV-protection education, and a supportive community.
We would be happy to provide copies for your office!
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