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School

Scholarships and IEP or 504 plans for your XP child


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Download these helpful Guides:

Advancing the Understanding of Special Education and Therapeutic Needs of Children with Neurodegenerative Disorders


Understanding the Difference Between an IEP and a 504 Plan


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Christine B. Dexter Scholarship  Christbfund.org

Deana’s Wish Memorial Scholarship  dlhfoundation.org

Jack Scura Fund    scura.com

Jack’s Ride Cancer Scholarship    Jacksride.org

James & Patricia Sood Scholarship    Ulmanfoundtion.org

Holly Scanlan Foundation Scholarship    hollyscanlanfoundation.org

Drew Swan Sibling Scholarship  extraspecialpeople.com

Google Lime Scholarship  limeconnect.com

Insight Scholarship  insight.org

Jason Kulpa Special Needs Scholarship  Kulpa.org

Lockheed Martin Stem Scholarship Program    lockheedmartin.com

Maximum Independence Scholarship    stpaccess.com

Powering education scholarship  alphaonenow.org

The ability of greater Toledo scholarships    abilitycenter.org

VSA Emerging young artists program  Kennedy-center.org

Wells Fargo Scholarship Program for people with disabilities learn  more.scholarsapply.org

You First Foundation Scholarship  youfirstfoundation.org

The John Lepping Memorial Scholarship    Lepfoundation.org

Egerton and Don Smitley Mesothelioma Scholarship    mesotheliomahelp.org

John Duvall Memorial Scholarship    ulmanfund.academicworks.com

Paul Bernot Memorial Foundation Scholarship    paulbernotfoundation.org


Tips and tricks for School:
  • Start at least 1 year in advance of your child starting school

  • With small kids use UV beads to educate about UV

  • Talk with school about IEP or 504 plan for your child

  • Extra days to complete assignments if child has eye problems

  • Make a video about your child and show to classroom

  • Bring lunch in the classroom if there is not an inside cafeteria- child has 1-2 friends allowed in with them

  • Spend indoor recess with a buddy

  • Nintendo Wii for indoor recess- exercise activity

  • Have emergency bag ready for child

  • Have UV gear follow child

  • Have extra UV gear for backup

  • Have an aide for your child if needed

  • One designated person assigned to your child for emergency procedures and have a backup trained

  • Fire alarms, field trips are things to be planned for

  • Get out of school 5 minutes early to avoid crowds and waiting for pick up in the sun.

  • 2 tinted buses with AC- in case one breaks down

  • Every teacher has an emergency kit and blanket

  • Resource teacher (campus officer/principle) has a tinted vehicle that child can sit in for an emergency.

  • Use Teddington Trust bear and book to educate other kids

  • Call school nurse to meet with before school starts

  • Parent to speak at back to school night to educate school community about XP

  • Have school tint all windows- Child deserves education in least restrictive environment

  • Make sure to talk with maintance staff to notify you if a window has been broken and replaced- Window will need to be tinted

  • BE involved with your child ask how school went that day.  If concerns help your child advocate for themselves

  • UV safe education and special needs education can sometimes be paid by public school district.  Check out what is around you that is best suited for your child.

 
 
 

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