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The XP Family Support Group (XPFSG) is a nonprofit organization dedicated to supporting individuals and families affected by Xeroderma Pigmentosum (XP) and other UV-sensitive conditions. Its mission is to improve the quality of life for people living with this rare genetic disorder through education, advocacy, emotional support, community engagement, and access to valuable resources. Founded more than 20 years ago, the organization has grown into an international network of families, healthcare professionals, researchers, and advocates working together to increase awareness and provide hope for those affected by XP.


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This post is from a suggested group

Welcome to our group XP Family Support Group (XPFSG) Group! A space for us to connect and share with each other. Start by posting your thoughts, sharing media, or creating a poll.

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