Social Security Online Info Page
Continues to offer protection to child with rare skin condition.
Girl with XP granted trip to Orlando Theme Parks.
Photodynamic Therapy Photodynamic Therapy in a Teenage Girl with Xeroderma Pigmentosum Type C.

Life with Xeroderma Pigmentosum

Special Project: Life with Xeroderma Pigmentosum by Ashley Day

Taunton girl Family copes with rare skin condition.
SD Doctor’s Health Mission May Change how skin cancer is treated .
TAG Students Article TAG Students bring home trophy from LEGO League.
Aimee’s Ocean Room Video of Aimee who has been fighting Xeroderma Pigmentosum (XP) since birth.
Informational article on Xeroderma Pgmentosum
Motorcycle prize in raffle fundraiser Aricle about XP Family Support Group and the annual Harley Raffle.
Off to a healthy start at school Article about Aimee Milota, a young girl with XP, going to school.
Mum praised for 10 years of fatal sunshine support group. People with XP praised a Buckinghamshire mum on the 10th birthday of a support group she set up.
Hidden From Light A story of compassion and hope for children afflicted with XP.
Allergic to sunlight Local teen is child of the night.
Multiple Skin Cancers in Adults with Mutations in the XP-E (DDB2) DNA Repair Gene A Journal of Investigative Dermatology advance online publication.

It provides recommendations on providing emergency sheltering services that are in compliance with disability-related federal laws. This document also describes common scenarios that shelter operators may encounter during emergencies.

Imagine having to hide from sunlight, avoiding windows for fear of being burned, dimming indoor lights. Courageous 3-year-old Peyton Madden has to do just that every minute of every day to survive.

A young sufferer of a rare skin disorder has won an award in recognition of the bravery shown in dealing…
Sacramento family adapts to challenge of caring for toddler with rare skin disorder (November 29, 20…
Penbrook woman gets help for rare skin disorder
A few months later and after much testing, Riley was diagnosed with Xeroderma Pigmentosum (XP), a ra…
Kim and Eric Beardslee weathered their daughter Graycen’s preschool years, but face new challenges i…
Local girl with rare skin disease gets the chance to be ‘normal’ by attending camp
Bay Area doctors join fight against a rare genetic skin disorder that afflicts an alarming number of…
The doctors’ advice was to “let them live a normal life”.
A mid-state Pennsylvania window tinting company installs UV-blocking film for free
XP Family Support group family the Bricker’s raise funds and awareness for children with Xeroderma P…
Graycen Beardslee is just like any other 2-year-old in the sense she loves playing with her dolls, h…
San Diego Doctor’s Global Health Mission May Change How Skin Cancer is Treated
Jeremy Lees can let the sun shine in – through newly filmed windows that protect him from harmful UV…
The neighborhood kids now it’s close to bedtime when the Feltner kids come out to play
The life of Peyton Chadwell, 11, has changed forever Recently diagnosed with XP, he and his family…
Home of Dr. Bari Cunningham Comprehensive Dermatology practice
Provides quick and easy access to comprehensive information about disability programs, services, law…

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