| TITLE |
DESCRIPTION |
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Social Security Online Info Page |
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Continues to offer protection to child with rare skin condition. |
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Girl with XP granted trip to Orlando Theme Parks. |
Photodynamic Therapy |
Photodynamic Therapy in a Teenage Girl with Xeroderma Pigmentosum Type C. |
Life with Xeroderma Pigmentosum |
Special Project: Life with Xeroderma Pigmentosum by Ashley Day |
| Taunton girl |
Family copes with rare skin condition. |
| SD Doctor's Health Mission |
May Change how skin cancer is treated . |
| TAG Students Article |
TAG Students bring home trophy from LEGO League. |
| Aimee's Ocean Room |
Video of Aimee who has been fighting Xeroderma Pigmentosum (XP) since birth. |
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Informational article on Xeroderma Pgmentosum |
| Motorcycle prize in raffle fundraiser |
Aricle about XP Family Support Group and the annual Harley Raffle. |
| Off to a healthy start at school |
Article about Aimee Milota, a young girl with XP, going to school. |
| Mum praised for 10 years of fatal sunshine support group. |
People with XP praised a Buckinghamshire mum on the 10th birthday of a support group she set up. |
| Hidden From Light |
A story of compassion and hope for children afflicted with XP. |
| Allergic to sunlight |
Local teen is child of the night. |
| Multiple Skin Cancers in Adults with Mutations in the XP-E (DDB2) DNA Repair Gene |
A Journal of Investigative Dermatology advance online publication. |
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It provides recommendations on providing emergency sheltering services that are in compliance with disability-related federal laws. This document also describes common scenarios that shelter operators may encounter during emergencies.
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Imagine having to hide from sunlight, avoiding windows for fear of being burned, dimming indoor lights. Courageous 3-year-old Peyton Madden has to do just that every minute of every day to survive. |
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A young sufferer of a rare skin disorder has won an award in recognition of the bravery shown in dealing... |
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Sacramento family adapts to challenge of caring for toddler with rare skin disorder (November 29, 20... |
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Penbrook woman gets help for rare skin disorder |
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A few months later and after much testing, Riley was diagnosed with Xeroderma Pigmentosum (XP), a ra... |
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Kim and Eric Beardslee weathered their daughter Graycen's preschool years, but face new challenges i... |
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Local girl with rare skin disease gets the chance to be 'normal' by attending camp |
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Bay Area doctors join fight against a rare genetic skin disorder that afflicts an alarming number of... |
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The doctors’ advice was to “let them live a normal life”. |
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A mid-state Pennsylvania window tinting company installs UV-blocking film for free |
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XP Family Support group family the Bricker's raise funds and awareness for children with Xeroderma P... |
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Graycen Beardslee is just like any other 2-year-old in the sense she loves playing with her dolls, h... |
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San Diego Doctor's Global Health Mission May Change How Skin Cancer is Treated |
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Jeremy Lees can let the sun shine in - through newly filmed windows that protect him from harmful UV... |
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The neighborhood kids now it's close to bedtime when the Feltner kids come out to play |
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The life of Peyton Chadwell, 11, has changed forever Recently diagnosed with XP, he and his family... |
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Home of Dr. Bari Cunningham Comprehensive Dermatology practice |
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Provides quick and easy access to comprehensive information about disability programs, services, law... |
