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Kansas City, MO Conference 2014

Product Description

 Join us for our bi-annual XP Medical Conference and meet other families with XP and listen to Researchers and Doctors give us up-to-date information on their current studies.  Kansas City, MO 2014

 

ONLINE REGISTRATION IS CURRENTLY CLOSED!!!  Please contact our office at (916) 628-3814.

Reviews

  1. Shady Hassan

    :

    Iam egyption and iam living now in equatorial guenia. My son is an XP patients.
    I would like to attend the event
    what can I do????

    • Ryan Deguzman

      :

      You and your son are more than welcome to come to the event. Please email me for more information. ryan@xpfamilysupport.org

  2. sherrie foster

    :

    I am an XP patient I live in Kansas City when and where is the convention also how do I get tickets and info?

    Thanks Sherrie

  3. Andri

    :

    You’re way ahead of me on this I can’t even bring myself to ask my fdirnes to write reviews of Just Desserts, let alone strangers! But I’m happy to offer my opinion here, based on absolutely no actual knowledge/information. I can understand reviewers charging a fee, especially if they actually READ the book, since their time like yours and mine is valuable. So even browsing a crappy book takes time.There are plenty of crappy traditionally published books, IMHO, including many that stay on the top of best-seller lists for months. I love the internet and Amazon for giving me the opportunity to sample and read the first X pages of a book. So I can discard the pompous and self-important (Franzen’s Freedom comes to mind immediately) and the pedestrian (Nicholas Sparks) without spending any money.What I will say about most traditionally published books is that the author or editor at least ran the manuscript through a rudimentary spell/grammar checker before publishing it. This is NOT necessarily the case with self-published books and so that’s probably why reviewers, faced with a huge onslaught of incoming books, choose to eliminate the self-published works.It’s too bad, because there are a lot of self-published jewels. I’ve read debut novels this summer by you, Cathryn Grant, Michelle Davidson Argyle, David Kazzie and published my own novella and found all of them to be terrific, professional efforts well-worth broad exposure. I have a pile more on my TBR list.Ramble ramble I think as we continue to self-publish AND promote the work of other self-published authors review policies will change. I hope so!

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