• Golf Tournament - July 11th!

    $65 before June 30th, $75 after June 30th. Includes: Golf, Cart, Goodie Bag, Dinner & Raffle, and Glow in the Dark Golf Ball

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  • Rent it now!

    Rent the Full Length Movie today!

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  • Para hacer una donación para ayudar a niños con xeroderma pigmentosa clic en el botón Donar.

    Todos los fondos recaudados irán directamente a ayudar a los niños en Guatemala.

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  • As Seen on Dateline!

    Featured on Dateline NBC Sunday June 14th at 7:00pm. Dateline interviewed one of our XP families and Dr. Bari Bickel Cunningham one of our medical advisers. Learn more about XP!

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The XP Family Support Group is dedicated to improving the quality of life of those affected with xeroderma pigmentosum through education and support services, researching effective treatments, and ultimately finding a cure.
XERODERMA PIGMENTOSUM or XP is a rare inherited disease affecting both males and females. It causes a person to be extremely sensitive to the damaging effects of ultraviolet radiation. Undiagnosed and untreated, Xeroderma Pigmentosum can lead to the early onset of skin cancer and blindness. In addition, approximately 20% of people with Xeroderma Pigmentosum also develop progressive neurological disease.

XP Family Support Group Upcoming Events

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