XERODERMA PIGMENTOSUM

Also known as XP, is a rare inherited disease affecting both males and females. It causes a person to be extremely sensitive to the damaging effects of ultraviolet radiation. Undiagnosed and untreated, Xeroderma Pigmentosum can lead to the early onset of skin cancer and blindness. In addition, approximately 20% of people with Xeroderma Pigmentosum also develop progressive neurological disease.

The Xeroderma Pigmentosum (XP) Family Support Group exists to improve the quality of life persons of those persons with XP and other diagnosed UV light condition. The Xeroderma Pigmentosum Family support group raises funds for create awareness and educate the public about XP, research, gives grants for UV protective equipment and products, assists families to attend an annual XP convention held once a year at various locations.


Land & Sea Tri-Tip & Crab Feed

crab-flyer-201722Benefiting XP Family Support Group

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Donate – Remington Lambert

img_8727In lieu of flowers. In memory of Remington Lambert, click the button below to make a donation.
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Remington was an amazing cousin to XP patient Graycen Beardslee.











Donate – Stanco Giurissevich

In lieu of flowers. In memory of Stanco Giurissevich, click the button below to make a donation.