XP: Survey of Patient Experiences

The Henry Ford Hospital Department of Dermatology (Detroit, MI) is conducting a survey of Xeroderma Pigmentosum (XP) patients in an attempt to gain valuable information about XP, including how this condition affects patients and their families.

This online survey should take approximately 15-30 minutes to complete.  By completing this survey, you are assisting your doctors in understanding who is most likely to develop XP, and at what age those people are affected.  Results from this survey may help other people who suffer from XP in the future. 

Participation in this survey is optional, free, and confidential.  Your participation does not require any treatment or risk to you or your child.

If you are interested in participating, please email your mailing address to hawki105@msu.edu.  We will mail you a consent form to be returned to our department.  You will then be given access to our online survey.

If you have any questions or concerns regarding this survey, or if you would like information regarding the study results, please call us at Henry Ford Hospital, Department of Dermatology. The telephone number is (313) 916-2171.

Thank you!  We greatly appreciate your participation in this project.