How Xeroderma pigmentosum forces Riley McCoy, Dana Hills High homecoming queen, to fight sunlight every day

(This is the second in an occasional series that will follow Riley McCoy through her senior year at Dana Hills High.) The new queen sparkled under the stadium lights, accepting tearful congratulations, hugs and kisses from those who took joy in her coronation. Her story seemed like a fairy tale. Riley McCoy, the girl whose rare disease forces her to spend her daylight hours indoors, floated through her first weekend as the Dana Hills High homecoming queen trying to find new places in he...
More

Homecoming queen dream comes true for Riley McCoy

She stood under the football stadium lights, in the spotlight, in the light of flashing cameras, in the light of a thousand smiles, and somehow she outshined all that. On this night, the girl who is not allowed to feel the warmth of the sun on her skin, owned the light. As she waited to hear if she would be named homecoming queen, the disease that had taken so much from her seemed so small. She wasn’t a girl wearing long gloves and a plastic hood. She was a princess hoping for a coronation...
More

Riley McCoy, the girl who can’t go out in the sun

Have you ever truly considered the sunset? Riley McCoy has. When you think about it, the sun doesn’t set at all. It doesn’t drop or recede. The sun is fixed and relentless to the point that, every evening, the earth turns away. Riley is 17, trying her best to have a typical senior year in high school. Her life is too dependent on the bend of the horizon, the reach of ultraviolet rays and the danger of the sun. Every day, Riley waits as the Earth rotates east. She gazes through tinted wi...
More