Aimee's Dream Room Like young children on Christmas Eve the... Piaskowski Beach Wedding Mike and Tiffany have chosen XP Family Support Group as their wedding gift of choice.
XP: Survey of Patient Experiences The Henry Ford Hospital Department of Dermatology is conducting a survey of Xeroderma Pigmentosum patients in an attempt to...
(or XP) is a rare inherited disease affecting both males and females. It causes a person to be extremely sensitive to the damaging effects of ultraviolet radiation. Undiagnosed and untreated, XP can lead to the early onset of skin cancer and blindness. In addition, approximately 20% of people with XP also develop progressive neurological disease.
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XP FAMILY SUPPORT GROUP
8495 Folsom Blvd #1
Sacramento, CA. 95826
The XP Family Support Group is dedicated to improving the quality of life of those affected with xeroderma pigmentosum through education and support services, researching effective treatments, and ultimately finding a cure.
A radio interview aboutHidden From Light This is a wonderful interview done on the San Diego radio station KPBS with Dr.Bari Cunningham and documen-tarion Brian Knappenberger.
We mourn the loss The XP Family Support Group mourns the loss of Anton (Tony) Jakovac
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